AA Diet Info for SMA

Based on Families Experience

Hannah’s Diet

Hannah’s Diet as of January 2012

Type 1, age 15, weight 53lbs.

  • 1 packet Tolerex 300 cal 6.2 grams protein
  • 2- 4 oz jars BeechNut Green Beans 90 cal 1 gram
  • 1-4 oz jar beechnut Swet Potato 100 cal 1 gram
  • 1-4 oz jar BeechNut AppleBlueberry 80 cal 0 grams
  • 1- 4oz jar BeechNut Banana 100 cal 1 gram
  • 1-4 oz jar Apple Mango Kiwi 90 cal 0 gram
  • Gerber Prunes Stage 1 120 cal 1 gram
  • 14 oz of 18 calorie breast milk 252 cal 2.8 grams
  • 5 oz Rice Dream Rice milk 75 cal 0.5 gram
  • Total: 1,207cal 17.5g/protein
  • 50.2 cal/kg .72 gm/kg protein

Supplements:

  • 2 Solaray Evening Primrose oil daily
  • 1 Country Life Basic B cap daily
  • 2 Solaray Cal-Mg-Citrate with Vit D daily
  • 1 TwinLab 1,000mg Vit C Ascorbic Acid daily
  • 1 Solgar 120 mg Co-Q 10 daily
  • 1 scoop Nano-VM 1-3 years daily
  • ½ tsp Baking Soda daily or 1/8 tsp Sea Salt
  • 1 or 2 Floragen 3 for Probiotic or 2 Kyolic Kyodophilous

Every other day:

  • 1 ½ Tab crushed Solgar Calcium Citrate with Vit D
  • 1 Xymogen 2,000 IU Vit D
This website explains the accurate amino acid diet for spinal muscular atrophy patients. For over 17 years, this diet has been used successfully in many SMA patients.Those following this diet appropriately are typically healthier and stronger than others similarly affected by SMA. Because this diet hasn't been studied by medical professionals, it is often not properly prescribed. I believe this is a disservice to SMA families striving to access all available care options for their children. This website has been established with the hope that more families can understand how to safely and optimally use this diet. Any information contained here is based on the opinion and experience of many families.