AA Diet Info for SMA

Based on Families Experience

Type 1, age 18 months

Sample diet appropriate for some kids with type 1, over 1 yr. and weighing approx. 20-23 lbs.

  • 2 packs Pediatric Vivonex
  • 24 oz. Water
  • 1 (stage) 2 baby food apples
  • 1 (stage 2) baby food squash
  • 3 oz. Prune Juice
  • 6 oz. of Pedialyte
  • 1 capsule of Turmeric
  • 1/2 capsule Choline
  • 1/2 capsule of ALA
  • 1Tbs Wellesse Calcium
  • 2 drops of Vitamin D IU
  • 1/8 tsp Ascorbate C
  • 1/8 tsp Unprocessed salt
  • 5ml L Carnitine
  • 5ml Sambucal
  • 1 full scoop NanoVM 1-3yrs.
This website explains the accurate amino acid diet for spinal muscular atrophy patients. For over 17 years, this diet has been used successfully in many SMA patients.Those following this diet appropriately are typically healthier and stronger than others similarly affected by SMA. Because this diet hasn't been studied by medical professionals, it is often not properly prescribed. I believe this is a disservice to SMA families striving to access all available care options for their children. This website has been established with the hope that more families can understand how to safely and optimally use this diet. Any information contained here is based on the opinion and experience of many families.