AA Diet Info for SMA
Based on Families Experience
Supplements
The following are supplements that are often used by families, in addition to their elemental formula. We do not use these formulas for complete nutrition, so it is necessary to add vitamins and minerals. In addition to traditional supplements, some families add herbs and other ingredients. It is very important to use caution whenever adding any substance to your child’s base formula. Always start with a very low amount and slowly increase. If a child isn’t tolerating some ingredient, he/she may experience g. i. distress, increased heart rate, bowel changes, or increased secretions. Minerals, fats, and amino acids should always be monitored and adjusted according to labs.
- NanoVM multi-vitamin from solacenutrition.com – available in 1-3 yr. and 4-8 yr. may start with a half-dose (1 scoop)
- Probiotic- Florajen 3, Primadolphilus Powder for children, or Complete Probiotic from Mercola.com
- L-Carnitne dose determined by labs, prescription form Carnitor or Levocarnitine preferred
- Ubiquinol Epic4health 170ml Liposomal Liquid, For a discount, write in comments for a child with Spinal Muscular Atrophy
- 1/8-1/4 teas. unprocessed salt – Himalayan or Celtic Salt, not white table salt
- Turmeric, Organic India capsules
- Vitamin C
- Calcium/Magnesium Citrate
- Vitamin D3
- Vitamin K2, Mercola or Solgar brands
- Nutricia Essential Amino Acid Mix if not covered with prescription can be ordered from Allegromedical.com
- Solgar Essential Amino Acid Complex Capsules
Extra amino acid supplements:
This website explains the accurate amino acid diet for spinal muscular atrophy patients. For over 17 years, this diet has been used successfully in many SMA patients.Those following this diet appropriately are typically healthier and stronger than others similarly affected by SMA. Because this diet hasn't been studied by medical professionals, it is often not properly prescribed. I believe this is a disservice to SMA families striving to access all available care options for their children. This website has been established with the hope that more families can understand how to safely and optimally use this diet. Any information contained here is based on the opinion and experience of many families.
