AA Diet Info for SMA

Based on Families Experience

Monitoring Diet

All children with SMA are different and will need their diets adjusted according to their individual growth and tolerance. Recalculating the diet every 3-4 months can ensure that a child’s intake is optimal. In addition to growth, families very experienced in using the AA diet have had very good results using laboratory testing to make appropriate adjustments to amounts of formula, vitamins, minerals, fat, and amino acid protein. Our children’s growth rates will also be different than those unaffected, and this is why regular growth charts are completely inappropriate for them.

This website explains the accurate amino acid diet for spinal muscular atrophy patients. For over 17 years, this diet has been used successfully in many SMA patients.Those following this diet appropriately are typically healthier and stronger than others similarly affected by SMA. Because this diet hasn't been studied by medical professionals, it is often not properly prescribed. I believe this is a disservice to SMA families striving to access all available care options for their children. This website has been established with the hope that more families can understand how to safely and optimally use this diet. Any information contained here is based on the opinion and experience of many families.